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  • Congenital Conditions and Rare Diseases Registration and Information Service for Scotland​ (CARDRISS)

    CARDRISS includes a national register that collects and holds information about babies in Scotland with a major structural and chromosomal condition or recognised syndrome up to their first birthday.

  • Maternity Inpatient and Day Case - Scottish Morbidity Record (SMR02)

    The Maternity Inpatient and Day Case dataset (SMR02) collects episode level data every time a mother goes in for an obstetric event (this can be an antenatal, delivery or postnatal episode).

  • NHS Lothian Secondary Care - Lothian extract from Scottish Morbidity Records

    Admission and discharge details (dates, times, specialties) from NHS Lothian hospitals and facilities. Includes data from Inpatients, Outpatients, Maternity Services, Mental Health Services, and the Scottish Cancer Registry.

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  • Scottish Linked Congenital Conditions Dataset (SLiCCD)

    The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS. This means all live-born babies diagnosed within the first year of life, spontaneous miscarriages and stillbirths occurring at 20 weeks gestation or over, and pregnancies terminated at any gestation that were affected by a major structural or chromosomal condition or recognised syndrome. Pregnancies ending between 2000 and 2020 are included.

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