Scottish Cancer Registry (SMR06)

Summary

This dataset is available through the Researcher Access Service.

Abstract

Public Health Scotland is responsible for the collection of information on Scottish residents when they are diagnosed with malignant (and some benign) tumours.

Contact point

phs.edris@phs.scot
Digital object identifier (DOI)

Not available

Keywords

Cancer HDRUK

Publisher

Identifier

7
Name

Public Health Scotland
Logo
Description

Public Health Scotland is an NHS Board. We are uniquely sponsored by the Scottish Government and the Convention of Scottish Local Authorities (COSLA) on behalf of local government.
Contact point

phs.edris@phs.scot

Documentation

Description

The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.

Associated media
- Available resource files can be downloaded below.
  
  File name
  
  Scottish Cancer Registry Smr06 Variables
  
  Type
  
  .PDF
  
  Download file
Is part of
- Available

Coverage

Spatial

Spatial coverage

United Kingdom, Scotland
Geographic levels

Not available

Temporal

Start date

01/01/1981
End date

Not available
Frequency

Annual
Distribution release date

01/09/2020

Provenance

Purpose

Not available
Source

Not available
Collection situation

Not available

Access and governance

Conditions of access

General research use

Requesting access to this data

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Usage

Conditions of use

Not available
Resource creator

Public Health Scotland
Is referenced by
Not available

Access

Access rights

https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/
Access service

Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Jurisdiction

Great Britain
Data controller

Public Health Scotland
Data processor

National Services Scotland

Format and standards

Language

English
Format

text, csv

Enrichment and linkage

Related datasets
- Not available
Linkage opportunity

Not available
Tools
- Not available

Synthetic data

Synthetic data is not yet available for this dataset.

Data dictionary

Table:

Download data dictionary

DATE_OF_BIRTH

Date of birth

AGE_IN_YEARS

Age at incidence date

AGE_IN_MONTHS

Age in months

SEX

1 = male, 2 = female

ETHNIC_GROUP

Optional

DATE_OF_DEATH

Date of death

CAUSE_1

Underlying cause of death, format ICD10

CAUSE_2

Secondary cause of death 1

CAUSE_3

Secondary cause of death 2

CAUSE_4

Secondary cause of death 3

Variable name	Variable description	Data type
DATE_OF_BIRTH	Date of birth
AGE_IN_YEARS	Age at incidence date
AGE_IN_MONTHS	Age in months
SEX	1 = male, 2 = female
ETHNIC_GROUP	Optional
DATE_OF_DEATH	Date of death
CAUSE_1	Underlying cause of death, format ICD10
CAUSE_2	Secondary cause of death 1
CAUSE_3	Secondary cause of death 2
CAUSE_4	Secondary cause of death 3