Renal Register – PHS National Dataset

Preview of JSON file

{
  "summary": {
    "title": "Renal Register – PHS National Dataset",
    "abstract": "Extract from Public Health Scotland Renal register for Tayside and Fife.",
    "keywords": "Scotland;,;Renal;,;HIC;,;PHS;,;Tayside;,;Fife",
    "publisher": {
      "name": "Health Informatics Centre - University of Dundee",
      "gatewayId": "5baa31c1-0280-4482-b8b7-a4953869f184"
    },
    "inPipeline": "Not available",
    "shortTitle": "Renal Register – PHS National Dataset",
    "datasetType": "Health and disease",
    "description": "Extract from PHS Renal register for Tayside and Fife. Patients included are High Dependency, Peritoneal Dependent and transplant. Patients excluded would be any others. Eg Low Clearance, Renal Referrals - basically any patients who are not actually dialysing or transplanted.",
    "contactPoint": "hicsupport@dundee.ac.uk",
    "datasetSubType": "Not applicable",
    "populationSize": 2800
  },
  "coverage": {
    "spatial": "United Kingdom,Scotland,Tayside Region;,;United Kingdom,Scotland,Fife",
    "followUp": "Unknown",
    "typicalAgeRange": "0-150"
  },
  "required": {
    "issued": "2024-10-08T11:28:31.925572Z",
    "version": "5.0.0",
    "modified": "2024-10-08T11:28:31.925587Z",
    "gatewayId": "120",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/120?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "5a3b5d8d-92e8-4d46-9a88-ca8f3808999f"
  },
  "provenance": {
    "origin": {
      "source": "EPR",
      "purpose": "Disease registry",
      "imageContrast": "Not stated",
      "collectionSituation": "Clinic"
    },
    "temporal": {
      "endDate": "2019-09-04",
      "timeLag": "Not applicable",
      "startDate": "2002-01-01",
      "accrualPeriodicity": "Static",
      "distributionReleaseDate": "2021-09-09"
    }
  },
  "observations": [
    {
      "observedNode": "Persons",
      "measuredValue": 2800,
      "observationDate": "2021-09-09",
      "measuredProperty": "COUNT",
      "disambiguatingDescription": "2800 patients in the dataset"
    },
    {
      "observedNode": "Events",
      "measuredValue": 2800,
      "observationDate": "2021-11-11",
      "measuredProperty": "Count",
      "disambiguatingDescription": "2800 records in the dataset"
    }
  ],
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "PHS/ NHS Tayside & Fife"
      },
      "dataUseLimitation": "General research use",
      "dataUseRequirement": "Disclosure control"
    },
    "access": {
      "accessRights": "https://www.dundee.ac.uk/hic/governance-service",
      "jurisdiction": "GB-SCT",
      "accessService": "HIC has implemented a remote-access Trusted Research Environment to protect data confidentiality, satisfy public concerns about data loss and reassure Data Controllers about HIC’s secure management and processing of their data.\n\nData is not released externally to data users for analysis on their own computers but placed on a server at HIC, within a restricted, secure IT environment, where the data user is given secure remote access to carry out their analysis.\n\nFull details are available via the following link:\nhttps://www.dundee.ac.uk/hic/safe-haven",
      "dataProcessor": "University of Dundee, Health Informatics Centre",
      "dataController": "Local NHS boards",
      "deliveryLeadTime": "2-4 weeks",
      "accessRequestCost": "Quotation available on request",
      "accessServiceCategory": "TRE/SDE"
    },
    "formatAndStandards": {
      "formats": "CSV;,;Database",
      "languages": "en",
      "vocabularyEncodingSchemes": "LOCAL"
    }
  },
  "structuralMetadata": [
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "SRR_No",
          "dataType": "varchar(256)",
          "sensitive": false,
          "description": "This is a unique Scottish Renal Registry (SRR) Number.."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "surname",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "Patient Surname."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "forename",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "Patient forname."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "PROCHI",
          "dataType": "varchar(11)",
          "sensitive": false,
          "description": "Anonymised patient identifier"
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "PRDText",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the Primary Renal Disease (PRD)  text."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "PRDCodeNumber",
          "dataType": "varchar(74)",
          "sensitive": false,
          "description": "This field represents the PRD code number.     See supporting documents for definitions."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "Dt_death",
          "dataType": "datetime",
          "sensitive": false,
          "description": "This field represents the date of death of the patient.  ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "Dt_first_rrt",
          "dataType": "datetime",
          "sensitive": false,
          "description": "This field represents the date of first Renal Replacement Therapy (RRT).  ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "Type_first_rrt",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the type of first Renal Replacement Therapy (RRT).."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "Date_RRT_NIne",
          "dataType": "datetime",
          "sensitive": false,
          "description": "This field represents the date of Renal Replacement Therapy (RRT) at Ninewells.  ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "type_rrt_NIne",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the type of Renal Replacement Therapy (RRT) at Ninewells.  ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "DT_cuurent_RRT",
          "dataType": "datetime",
          "sensitive": false,
          "description": "This field represents the date of RRT."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "type_current_RRT",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the type of current Renal Replacement Therapy (RRT).  ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "DTaccess",
          "dataType": "datetime",
          "sensitive": false,
          "description": "This field represents the date of access."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "Accessdescription",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents access description:  1 AV Fistula - Brachial artery to basilic vein  1 AV Fistula - Brachiocephalic  1 AV Fistula - Details not known   1 AV Fistula - Radiocephalic NOS   1 AV Fistula - Ulnar artery to cephalic vein  1 Brachiobrachial Fistula   2 AV Graft - Brachial artery to basilic vein  2 AV Graft - Brachial artey to cephalic vein  2 AV Graft - Details not known   4 Non Tunnelled femoral vein catheter   4 Non tunnelled internal jugular vein catheter  5 Tunnelled internal jugular vein catheter  5 Tunnelled line details not known   5 Tunnelled subclavian vein catheter ."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "AccessType",
          "dataType": "int",
          "sensitive": false,
          "description": "This field represrenets the type of access used for therapy.  The data is defined numerically 1-5 the description for each number is within the Accessdescription field."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "AccessMode",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the mode of access for therapy.  The data is defined by A or B. The description for each is within the Access Description field."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "side",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "This field represents the side of access.  The data is defined with Left or Right."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    },
    {
      "name": "Renal Register - ISD",
      "columns": [
        {
          "name": "confirmed",
          "dataType": "varchar(max)",
          "sensitive": false,
          "description": "The data is defined by NULL or 'Y'."
        }
      ],
      "description": "Extract from ISD's Renal register for Tayside and Fife.  Patients included are High Dependancy, Peritonatal Dependant and transplant.   Patients excluded would be any others Eg Low Clearance, Renal Referrals - basically any patients who aren't actually dialysing or transplanted."
    }
  ]
}