Congenital Conditions and Rare Diseases Registration and Information Service for Scotland - (CARDRISS)
Summary
Abstract
CARDRISS includes a national register that collects and holds information about babies in Scotland with a major structural and chromosomal condition or recognised syndrome up to their first birthday.
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Contact point
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Digital object identifier (DOI)Not available
Keywords
Publisher
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Identifier7
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NamePublic Health Scotland
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Logo
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DescriptionPublic Health Scotland is an NHS Board. We are uniquely sponsored by the Scottish Government and the Convention of Scottish Local Authorities (COSLA) on behalf of local government.
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Contact point
Documentation
Description
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Associated media
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Available resource files can be downloaded below.
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Is part of
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Coverage
Spatial
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Spatial coverage
United Kingdom, Scotland
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Geographic levelsNot available
Temporal
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Start date01/01/2021
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End dateNot available
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FrequencyAnnual
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Distribution release dateNot available
Provenance
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PurposeDisease registry
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SourceEpr
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Collection situationNot available
Access and governance
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Conditions of accessGeneral research use
Requesting access to this data
This is a secure dataset that can only be accessed by researchers from approved organisations.
Find out how to apply to access this dataset
Usage
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Conditions of useNot for profit use, Project-specific restrictions
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Resource creatorNot available
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Is referenced byNot available
Access
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Access rights
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Access serviceScottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
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JurisdictionNot available
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Data controllerPublic Health Scotland
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Data processorPublic Health Scotland
Format and standards
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LanguageEnglish
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Formattext, csv
Enrichment and linkage
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Related datasets
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Linkage opportunityNot available
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Tools
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Synthetic data
Synthetic data is not yet available for this dataset.
Data dictionary
CARDRISS ID
System generated unique identifier per baby.
OUTCOME OF PREGNANCY
This states whether the baby was live born, stillborn, late fetal loss or subject to a t...
PREGNANCY END DATE
The date the pregnancy ended.
BABY CHI
The baby's CHI number.
BABY SEX
The baby's state of being male or female, reflecting biological or assigned sex.
CARDRISS BABY DATE OF DEATH
The baby's date of death as recorded on the CARDRISS registry tool.
MOTHER CHI
Mother's CHI number.
MOTHER DATE OF BIRTH
The mother's date of birth.
MOTHER POSTCODE
The mother's postcode at the pregnancy end date.
OUT OF SCOTLAND FLAG
If the mother was a resident outside Scotland at end of pregnancy.
| Variable name | Variable description | Data type | |
|---|---|---|---|
| CARDRISS ID | System generated unique identifier per baby. | ||
| Outcome of Pregnancy | This states whether the baby was live born, stillborn, late fetal loss or subject to a t... | ||
| Pregnancy End Date | The date the pregnancy ended. | ||
| Baby CHI | The baby's CHI number. | ||
| Baby Sex | The baby's state of being male or female, reflecting biological or assigned sex. | ||
| CARDRISS Baby Date of Death | The baby's date of death as recorded on the CARDRISS registry tool. | ||
| Mother CHI | Mother's CHI number. | ||
| Mother Date of Birth | The mother's date of birth. | ||
| Mother Postcode | The mother's postcode at the pregnancy end date. | ||
| Out of Scotland Flag | If the mother was a resident outside Scotland at end of pregnancy. |