Congenital Conditions and Rare Diseases Registration and Information Service for Scotland - (CARDRISS)

Summary

Abstract

CARDRISS includes a national register that collects and holds information about babies in Scotland with a major structural and chromosomal condition or recognised syndrome up to their first birthday.

• Contact point
  phs.edris@phs.scot
• Digital object identifier (DOI)
  Not available

Keywords

Publisher

• Identifier
  https://ror.org/023wh8b50
• Name
  Public Health Scotland
• Logo
  
• Description
  Public Health Scotland is an NHS Board. We are uniquely sponsored by the Scottish Government and the Convention of Scottish Local Authorities (COSLA) on behalf of local government.
• Contact point
  phs.edris@phs.scot

Documentation

Description

• Associated media

  • Available resource files can be downloaded below.

    https://publichealthscotland.scot/population-health/conditions-and-diseases/disease-registration/congenital-conditions-and-rare-diseases-registration-and-information-service-for-scotland-cardriss/overview/

    File name

    Data Dictionary Congenital Conditions And Rare Diseases Registration And Information Service For Scotland (CARDRISS)%401.0.1

    Type

    .XLSX

    Download file
• Is part of
  • Not available

Coverage

Spatial

• Spatial coverage

  United Kingdom, Scotland

• Geographic levels
  Not available

Temporal

• Start date
  Not available
• End date
  Not available
• Frequency
  Not available
• Distribution release date
  Not available

Provenance

• Purpose
  Not available
• Source
  Not available
• Collection situation
  Not available

Access and governance

• Conditions of access
  Not available

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

• Conditions of use
  Not available
• Resource creator
  Not available
• Is referenced by
  Not available

Access

• Access rights
  Not available
• Access service
  Not available
• Jurisdiction
  Not available
• Data controller
  Not available
• Data processor
  Not available

Format and standards

• Language
  Not available
• Format
  Not available

Enrichment and linkage

• Related datasets
  • Not available
• Linkage opportunity
  Not available
• Tools
  • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

Data Dictionary