Scottish Linked Congenital Conditions Dataset (SLiCCD)

Summary

Abstract

The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS. This means all live-born babies diagnosed within the first year of life, spontaneous miscarriages and stillbirths occurring at 20 weeks gestation or over, and pregnancies terminated at any gestation that were affected by a major structural or chromosomal condition or recognised syndrome. Pregnancies ending between 2000 and 2020 are included.

• Contact point
  phs.edris@phs.scot
• Digital object identifier (DOI)
  Not available

Keywords

Publisher

• Identifier
  7
• Name
  Public Health Scotland
• Logo
  
• Description
  Public Health Scotland is an NHS Board. We are uniquely sponsored by the Scottish Government and the Convention of Scottish Local Authorities (COSLA) on behalf of local government.
• Contact point
  phs.edris@phs.scot

Documentation

Description

• Associated media

  • Available resource files can be downloaded below.

    https://publichealthscotland.scot/resources-and-tools/health-intelligence-and-data-management/national-data-catalogue/national-datasets/search-the-datasets/scottish-linked-congenital-conditions-dataset-sliccd/
    https://publichealthscotland.scot/population-health/conditions-and-diseases/disease-registration/congenital-conditions-and-rare-diseases-registration-and-information-service-for-scotland-cardriss/congenital-conditions/what-are-congenital-conditions/
• Is part of
  • Available

Coverage

Spatial

• Spatial coverage

  United Kingdom, Scotland

• Geographic levels
  Not available

Temporal

• Start date
  01/01/2020
• End date
  31/12/2020
• Frequency
  Annual
• Distribution release date
  Not available

Provenance

• Purpose
  Disease registry
• Source
  Epr
• Collection situation
  Not available

Access and governance

• Conditions of access
  General research use

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

• Conditions of use
  Not available
• Resource creator
  Not available
• Is referenced by
  Not available

Access

• Access rights
  https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/
• Access service
  Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
• Jurisdiction
  Northern Ireland, Great Britain, United Kingdom of Great Britain and Northern Ireland
• Data controller
  Public Health Scotland
• Data processor
  Public Health Scotland

Format and standards

• Language
  English
• Format
  text/csv

Enrichment and linkage

• Related datasets
  • Not available
• Linkage opportunity
  Not available
• Tools
  • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

Data dictionary