Health and Care Experience Survey

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://publichealthscotland.scot/publications/health-and-care-experience-survey/health-and-care-experience-survey-2024/"
  },
  "summary": {
    "title": "Health and Care Experience Survey",
    "abstract": "The Scottish Health and Care Experience (HACE) Survey is a postal survey which is sent to a random sample of people who are registered with a General Practice in Scotland based on latest information available on an identified census date.  The most recent edition of the survey was sent to a random sample of people who were registered with a General Practice in Scotland based on latest information available on the 25 September 2023.",
    "keywords": "Survey",
    "publisher": {
      "name": "Public Health Scotland",
      "gatewayId": "07"
    },
    "inPipeline": "Available",
    "shortTitle": "Health and Care Experience Survey",
    "datasetType": "Health and disease",
    "description": "The  Scottish Health and Care Experience survey asks about peoples’ experiences of accessing and using their General Practice and other local healthcare services; receiving care, support and help with everyday living; and caring responsibilities.\nThe survey is run in partnership by the Scottish Government and Public Health Scotland. Both the Scottish Government and Public Health Scotland are involved in the planning and organisation of the survey, as well as analysing and reporting on the survey responses.\n\nThe survey covers five areas of health and care experience:\n\n1)Your General Practice\n2)Treatment or advice from your General Practice\n3)Out of hours healthcare\n4)Care, support and help with everyday living\n5) Caring responsibilities",
    "contactPoint": "phs.edris@phs.scot",
    "datasetSubType": "Not applicable",
    "populationSize": -1
  },
  "coverage": {
    "spatial": "United Kingdom , Scotland"
  },
  "required": {
    "issued": "2025-06-30T13:07:32Z",
    "version": "1.0.0",
    "modified": "2025-06-30T13:07:32Z",
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  "provenance": {
    "origin": {
      "source": "Paper-based",
      "purpose": "Care",
      "imageContrast": "Not stated",
      "collectionSituation": "Other"
    },
    "temporal": {
      "timeLag": "Other",
      "startDate": "2018-10-01T02:58:30Z",
      "accrualPeriodicity": "Irregular",
      "distributionReleaseDate": "2024-05-27T23:59:15Z"
    }
  },
  "accessibility": {
    "usage": {
      "dataUseLimitation": "General research use",
      "dataUseRequirement": "Disclosure control;,;Not for profit use;,;Project-specific restrictions;,;Ethics approval required;,;Publication required"
    },
    "access": {
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      "jurisdiction": "UK",
      "accessService": "Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/",
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      "dataController": "Public Health Scotland",
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    },
    "formatAndStandards": {
      "formats": "text/csv",
      "languages": "en",
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  },
  "structuralMetadata": [
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q1 When did you last contact the General Practice named on the enclosed letter?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q2 Roughly, how often have you contacted this General Practice in the last 12 months?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q3 How easy is it for you to contact your General Practice in the way that you want?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q4 If you ask to make an appointment with a doctor 3 or more working days in advance, does your General Practice allow you to?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q5 What do you think of the opening hours of your General Practice?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q6 The last time you needed an appointment with your General Practice, what kind of appointment did you get?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q7 Were you offered a choice in the kind of appointment you received?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q8 Were you satisfied with the appointment you were offered?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q9 If you weren’t satisfied with the appointment you were offered, why was that? Please tick all that apply"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q10 The last time you needed to see or speak to a doctor or a nurse from your General Practice quite urgently, how long did you wait?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q11 What was the main reason you waited longer than 2 working days?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q12 Overall, how would you rate each of the following? Please tick one box on each line: If a statement is not applicable, please leave that line blank\n\n12a. The quality of information provided by the receptionist\n12b. The arrangements for getting to speak to a: Doctor\n12c. The arrangements for getting to speak to a: Nurse\n12d. The arrangements for getting to speak to a: Pharmacist/Chemist\n12e. The arrangements for getting to speak to a: Physiotherapist\n12f. The arrangements for getting to speak to a: Mental Health Professional\n12g. The arrangements for getting to speak to a: Another Healthcare Professional"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Your General Practice",
          "sensitive": false,
          "description": "Q13 Overall, how would you rate the care provided by your General practice?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Treatment or Advice from your General Practice",
          "sensitive": false,
          "description": "Q14 For this section, think about the last time you received treatment or advice at your General Practice in the last 12 months. What was it for? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Treatment or Advice from your General Practice",
          "sensitive": false,
          "description": "Q15 Thinking about the consultation above, who did you receive most of your treatment or advice from? Please tick one box only."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Treatment or Advice from your General Practice",
          "sensitive": false,
          "description": "Q16 Thinking about that healthcare professional, how much do you agree or disagree with the following statements? Please tick one box on each line. If the statement is not applicable, please leave that line blank. \n\n16a. I was given the opportunity to involve the people that matter to me\n16b. I was listened to\n16c. I was given enough time\n16d. I was treated with compassion and understanding\n16e. My treatment and care were well co-ordinated\n16f. The heathcare professional knew my medical history\n16g. I had a chance to ask about the benefits and risks of the treatment\n16h. I was able to ask questions if I wanted to\n16i. I understood the information I was given\n16j. The health professional checked I understood what I had been told\n16k. Staff helped me to feel in control of my treatment and care\n16l. I was involved in decisions about my treatment and care\n16m. I felt able to make an informed choice about my treatment and care\n16n. I was treated with dignity and respect"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Treatment or Advice from your General Practice",
          "sensitive": false,
          "description": "Q17 How would you describe the effect of the treatment or advice from that appointment on the following? Please tick one box on each line.\n\n17a. The symptoms you were experiencing\n17b. Your overall wellbeing"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Treatment or Advice from your General Practice (Comments)",
          "sensitive": false,
          "description": "Q18 If there is anything else you would like to tell us about your General Practice, please do so here."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q19 In the past 12 months, have you contacted an NHS service when you wanted to see a healthcare professional, but your General Practice was closed?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q20 For the rest of this section, think of the last time you tried to get treatment when your General Practice was closed in the last 12 months. What did you do? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q21 Who did you receive most of your treatment or advice from?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q22 How did you consult with the healthcare professional?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q23 What did you receive the main treatment, assessment or advice from this service for?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q24 How much would you agree or disagree with the following statements about your experience? Please tick one box on each line. If a statement is not applicable, please leave that line blank.\n\n24a. I was listened to\n24b. I was given enough time\n24c. I was treated with compassion and understanding\n24d. I was given the opportunity to involve the people that matter to me\n24e. I understood the information I was given\n24f. I was able to ask questions if I wanted to\n24g. Staff helped me to feel in control of my treatment and care\n24h. My treatment and care was well coordinated\n24i. I was treated with dignity and respect"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare",
          "sensitive": false,
          "description": "Q25 Overall, how would you rate the care you experienced from this service?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Out of Hours Healthcare (Comments)",
          "sensitive": false,
          "description": "Q26 If there is anything else you would like to tell us about your experiences of the services covered in this section, please do so here:"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q27 This section asks questions about help and care services for everyday living including\nhelp that you get from any organisations, friends or family.\n\nIn the last 12 months, have you had any help or support with everyday living? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q28 Who funds your help or support with everyday living? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q29Which of the following applies to you and how your social care is arranged?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q30 How much do you agree or disagree with the following about your help, care and support services? Please exclude care and help you get from friends and family. Please tick one box on each line. If a statement is not applicable, please leave it blank.\n\n30a. I was aware of the help, care and support options available to me\n30b. I had a say in how my help, care or support was provided\n30c. People took account of the things that mattered to me\n30d. I felt safe\n30e. I was supported to live as independently as possible\n30f. My health, support and care services seemed to be well coordinated\n30g. The help, care or support improved or maintained my quality of life\n30h. I was treated with dignity and respect"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q31 Overall, how would you rate your help, care or support services? Please exclude the care and help you get from friends and family."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Care, Support and Help with Everyday Living",
          "sensitive": false,
          "description": "Q32 If you are not receiving all the help and care services for everyday living that you feel you need, which options describe your situation? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Caring Responsibilities",
          "sensitive": false,
          "description": "Q33 Do you regularly help, support or look after someone because they are living with a disability or physical / mental health condition, or have problems related to old age? Please exclude any caring that is done as part of any paid employment or formal volunteering."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Caring Responsibilities",
          "sensitive": false,
          "description": "Q34 Who do you help or support? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Caring Responsibilities",
          "sensitive": false,
          "description": "Q35 Have you received any support to help with your caring role in the last 12 months? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Caring Responsibilities",
          "sensitive": false,
          "description": "Q36 Have you received an assessment of your needs as a carer, or a written plan about your caring role and support?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "Caring Responsibilities",
          "sensitive": false,
          "description": "Q37 How much do you agree or disagree with the following about how you feel as a carer most of the time? Please tick one box on each line. If a statement is not applicable, please leave that line blank.\n\n37a. I have a good balance between caring and other things in my life\n37b. Caring has had a negative impact on my health and wellbeing\n37c. I have a say in services provided for the person(s) I look after\n37d. Local services are well coordinated for the person(s) I look after\n37e. I feel supported to continue caring"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": false,
          "description": "Q38 The information below helps us to understand social inequalities related to access to health services\nfor all. Your answers are important, but please skip any questions you prefer not to answer.\n\nIn general, how well do you feel that you are able to look after your own health?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": false,
          "description": "Q39 Do you have any of the following, which have lasted, or are expected to last, at least 12 months? Please tick all that apply."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": false,
          "description": "Q40 Are your day-to-day activities limited because of a health problem or disability which has lasted, or is expected to last, at least 12 months? Include problems related to old age."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": false,
          "description": "Q41 Do you suffer from chronic or persistent pain, that is pain that carries on for longer than 3 months despite medication or treatment?"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": true,
          "description": "Q42 Which of the following best describes your sexual orientation? Please tick one box only."
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": true,
          "description": "Q43 What best describes your ethnic group? Please tick one box only"
        }
      ]
    },
    {
      "name": "HACE 2024",
      "columns": [
        {
          "name": "About you",
          "sensitive": true,
          "description": "Q44 What religion, religious denomination or body do you belong to?"
        }
      ]
    }
  ],
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    {
      "materialType": "None/not available"
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}