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My Data

Led by: University of Dundee

Funding awarded: £9,997

Two people facing away from the camera are sticking post-it notes onto a long sheet of paper. The paper has notes from a discussion about data written and illustrated on it

The My Data project engaged with groups of people who are in recovery from drugs and alcohol use to explore perceptions of the use of administrative data in research.  

Working with Restoration Fife, a Dunfermline-based community organisation, the team initially ran workshops with two groups. Researchers introduced what administrative data is and how datasets are used, then asked participants how they felt about their data being shared and whether there is any data they would not want shared.  

A large sheet of paper stuck to a wall, with illustrations on data and data sharing
Illustrations generated from the project

 

Discussions highlighted the mixed opinions and feelings of groups about how their data is used and varying levels of trust in researchers and services. The groups also highlighted the potential gaps in administrative data where interactions with services are patchy or do not cover the whole situation someone is in.

Smaller groups of participants then worked with an artist, Andrew Low, to co-produce films including developing the storyboard and script, deciding on the type of animation and feeding back changes on the final product.

Watch the film below:

 

One participant is already in discussion about being an expert by experience on an administrative data study around substance use, and findings around how people feel about some of the topics discussed have already been used to support further successful grant applications in this field.

An easy-read report of the findings is currently being created with the help of graphic designer, Emma Quinn. The easy-read report and the film will be disseminated through third sector organisations such as Restoration Fife, the Scottish Drugs Forum, Scottish Families affected by Drugs and Alcohol, as well as the Drugs Research Network Scotland.

The My Data team said:

“Our project included the voices of those who are often left out of research. Data often feels disconnected from the people behind it, but in reality, each statistic represents a human being with their own views about how their information is being used. Our research has demonstrated that individuals are not indifferent to "being a statistic" and that data are people with a real interest in how their information is being used.”

Watch the project summary

Find out more about the project in this video, recorded as part of the RDS Public Engagement Fund showcase in February 2024.

 

Back to the 2022-23 Public Engagement Fund recipients

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