Patient-led data advocacy movement use MY data is celebrating National Patient Data Day 2026 on Wednesday 24 June with two public webinars showcasing the use of patient data across the UK and its positive impact on the lives and health of individuals and communities within the four nations.
Layla Robinson, Chief Operating Officer at Research Data Scotland (RDS) will be speaking on the panel of a webinar which asks what patients and the public can expect from the new Health Data Research Service.
Event information
Date: Wednesday 24 June 2026
Time: 09:00 to 14:45
Location: Online
Click here to register to attend
About the event
GP data has been described as the “jewel in the crown of English health data”. The Prime Minister has said the new Health Data Research Service (HDRS) will “turbo-charge” research. But how can patients and public be confident that our data is working for us and the NHS, so that we ALL feel the benefits?
Over two webinars, use MY data and the panel members will be:
Highlighting how we benefit from the use of our patient data for healthcare and research - the success stories, the achievements, and the opportunities ahead.
Asking what we can expect from the new Health Data Research Service.
Debating how to overcome the challenges to ensuring our health data is used to save lives and improve outcomes, while maintaining the trust of patients and ensuring the robust and transparent safeguarding of our data.
Asking how the NHS can benefit from our patient data and not be ripped off.
Finding out how commercial companies use patient data
Looking at the role of AI in health research – is it really a game changer?
Who should attend?
National Patient Data Day is for anybody who cares about how our patient data is used and safeguarded for the good of all. It is our data, our health, our voice!
Everybody welcome: patients, public, healthcare professionals, researchers, policy makers.